As different medications were given to me to try and put the Ulcerative Colitis into remission, I did experience some improvement. And when I did, I wanted to shout it to the world! When you’ve been so miserable, ANY appearance of possible improvement is so exciting!!
But it was very short lived. Only a day or two actually, before my symptoms would go back to what they were, or worse. This pattern continued even in the hospital, as high doses of IV steroids were administered and then a round of Remikade. We all really hoped the Remikade would do the trick. But my colon kept on swelling as the Colitis took over my entire colon. My doctor said the pathology of my disease was rare, in that it was so aggressive and fast growing. Many people who suffer from Ulcerative Colitis are able to manage it with medications and live somewhat “normal” lives, some even without it recurring for years and years. Others endure years of trying different medications, in and out of the hospital to put the disease back into remission.
In many ways, I am very grateful that I will not have to endure years of battling this. To have this disease get to the point, very quickly, where it was about to perforate my colon, was in many ways a mercy. My amazing surgeon caught it just before it perforated, saving me from an even worse ordeal. And now, the colitis is gone! Gone! I am so, so very thankful and relieved.
Now Genevieve can shout from the rooftops, “I’m cured! I’m cured!” Now it’s just a matter of healing from the surgery and getting used to my new normal with the ileostomy. These things seem minor in comparison to what I’ve gone through. There is so much to be thankful for!
*I was able to make my daughter’s oatmeal this morning…and I was grateful that I’m alive to do that.
*I was able to go to church yesterday, cry through the songs, hug people’s necks…and I was so thankful to be able to do that.
*I am able to walk a bit stronger and for a little longer each day…I am so grateful I’m seeing improvement.
*I am needing pain medications less and less…so thankful for that!
*So many little things each day…I try to record them, so I can remember on the days that seem like I’m going backwards in improvement. And there are days like that. They are hard. I try to just be where I am and remember that this too shall pass. And when it does…I have something else to be grateful for!