I received a text from my youngest daughter Maddie when she was at school on Thursday morning. Sitting at the computer, I was marveling at all the “likes” and “congrats” and purchases for my children’s book, Genevieve and the Kite. It felt like my kite was flying high in the breeze and I was along for the ride, enjoying every bit of it.
“Mom, my insulin cartridge is empty.”
Immediately, my feet hit the ground, let go of the kite, and off I went to the middle school. This news isn’t the worst thing you could hear from your T1D child. But it IS a show stopper, one for which you leave whatever it is you’re doing at the moment to go take care of. Without insulin, she will go into ketoacidosis from no basal rates nor the ability to process the carbs she eats. As I was leaving the school, Maddie with a full cartridge in her pump and having corrected for the high blood sugar, I knew the goodness of that dose of reality.
Mind you, I’m not saying diabetes is good. Absolutely not! Again, on Friday morning, as I sat waiting for her to come down to breakfast, I’m once again looking at the computer, overwhelmed by the delightful reception to my book. But when Maddie tests her blood sugar and it is 413….THUNK! Feet on the ground. The scramble begins. I try to figure out why it’s so high. Was it something she ate the night before? Did she actually bolus the snacks she had in the evening? Are there bubbles in the tubing line? In the cartridge? Is the inset failing? I did not feel good at all dropping her off at school. She insisted she felt fine and “mom, I have to be there!…I have so many tests!”
Diabetes is no respecter of persons. It does not care what you have going on in your life. It roller coasters without warning. It does what it’s going to do. It is what it is…a life-threatening disease. The amazing technology developed over the years, has allowed Type 1 Diabetics to live what so many call “a normal life”. I still, after 3 1/2 years, rankle at that phrase.
Yet this is the life my daughter lives, day in and day out. My husband and I live it with her. It is our reality. And viewed from a perspective of trust, it is a reality that anchors me, provides a tether to my flights of fancy. I have many callings on my life. Yes, being an artist is one. But I’m also called to care for our children and to be willing to ride the roller coaster of Type 1 Diabetes.
We Walk in less than two weeks! You can read here and here, other posts about our walks to raise awareness and funds to find a cure for Type 1 Diabetes. A cure is on the horizon!! We are excited to hear about the developments and successes going on in the world of science. Someday soon, my daughter might live a life that is a good bit closer to what we would call “normal”. And that will be a blessing!!
**I am offering a giveaway of my book Genevieve and the Kite! For ANY DONATION, $2, $5, $10, whatever, to JDRF in honor of Maddie and her Mission to cure Diabetes, I will enter your name in a drawing. The day of the Walk, I’ll have Maddie pull a name to see who wins! If you’ve already purchased a copy, perhaps you’d like another to give to a friend? We are always amazed at everyone’s generosity to give to this awesome cause in Maddie’s honor.
Click Here to make your donation to JDRF for Maddie’s Mission!
Maddie thanks you!
Randy and I thank you!
From the bottom of our hearts!